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Overcoming Peyronie's, PremE, and HOCD (9 year battle)

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  • Overcoming Peyronie's, PremE, and HOCD (9 year battle)

    First off, I wish I had known about this forum at 13 years old when I accidentally injured myself. It likely would have saved me many years of pain, depression, and feeling like I had a big secret hanging over my head everywhere I went. Not fun stuff for a 13 year old to go through. But anyhow, I am thankful to have found this forum when I did, about six months ago, and have decided to share my story and my steps toward complete recovery (which is now in progress).

    I'm going to try to keep this as concise as possible, though I know there will be details that I could go on forever about. If it feels like I'm telling you my life story for no reason, it's probably because you can't relate or don't need to hear the information. I've decided to do this in order to hopefully save some other sorry soul out there from making the same natural mistakes that I have made for the past 9 years before getting to a point of acceptance and understanding of how to most constructively move forward. I am 22 now and graduated from college over a year ago. All I can say is thank god for music. I have been playing guitar since I was 8 and I swear it feels like music was given to me in order to get through all this. Okay, bear with me now…

    13 years old


    -Injured my penis after an erection was forced in the opposite direction (by tight clothing). I heard/felt a popping sound/sensation. Hard to know if it was actually audible to others.

    -Developed the symptoms of hard flaccid immediately which continued to be a daily struggle for the next 9 years.

    -Became extremely worried about the accident and tried to masturbate to make sure I was ok. I realized how difficult it was to get an erection. The underside of the base of my penis was not filling properly with blood so my erections had no support and aimed downward. I was completely healthy physically and mentally with a strong slightly upward erection before this.

    -I had increasing anxiety from that point forward and began to withdraw from being social at school as my confidence completely vanished. I did not tell anyone what happened, not even my parents.

    -Did some research a few months later after realizing it wasn’t getting better and found out that I “should” have gotten surgery immediately after the accident (though I now know this isn’t always entirely true). This tripled my anxiety and I quit researching and began to go into a state of denial and depression.

    15 years old

    -Still haven’t told my parents.

    -Increasing depression and anxiety, which made me susceptible to a mental illness known as HOCD. This was triggered after a failed masturbation session where I was clicking through pictures of girls and when I reached PONR a picture of a guy popped up and totally killed the pleasure. Unfortunately, this then happened again one time when I was visualizing a girl in my mind and masturbating. Right before I ejaculated a male face popped in my head and killed the pleasure. So, being weak in confidence already, I began to obsess about why that had happened and if it meant I was gay (though I got no pleasure at all from the intrusive images I just became full of fear as to why it was happening). OCD and anxiety began to surround my sexual identity even though up until that point I had been completely confident in that aspect of myself. I’m not going to go into the details of the walking hell that is HOCD because that would take a whole thread, but if you are interested, you can do some research. I will provide links later to some success stories that helped me begin facing the issue rather than fearing the issue which only compounds the illness and gives it power over you (as with any OCD).

    17 years old

    -I hit rock bottom with my second girlfriend (first of which I ever had sexual encounters with, but no intercourse) when I couldn’t stay hard enough to get a condom on. Also wasn’t enjoying oral completely because I was anxious about whether I would have an HOCD thought, blah blah blah, my anxiety was through the roof and I didn’t even really know it at the time.

    -So, I finally told my parents about the injury. However, I said nothing about the HOCD mental issues because I was still in denial and didn’t want to accept that I had a problem that needed to be faced.

    -I went to see a urologist and the guy literally just looked at my flaccid state for like 20 seconds and said I was fine. I was eager to believe him so I did. This helped my confidence for like a day or two but my parents just thought everything was ok from there on. Symptoms continued unchanged.

    18 years old

    -I met a girl freshman year at college and finally had sex after dating 6 months. I was barely able to perform (weak erections) for a good while until I got completely comfortable with her at about one year in.

    -At this point my confidence returned slightly as I was able to “fool” myself that I was better both mentally and physically. However, I remember still being OCD and anxious and having hard flaccids all the time, I was just able to ignore it all better than ever. But I wasn’t actually healing or facing my fears. It was a band-aid type of relationship that worked for a while.

    20 years old

    -We broke up and I began turning to a path of drug experimentation and overall self-destruction even though I had never been a party person, drinker, or smoker.

    -This also “worked” for a while as I was smoking pot all the time and drinking heavily and meeting all sorts of new people. I felt like I was experiencing life like never before because I had found a way to be social and “have fun”. But underneath it all I was really just running from my demons. I was not truly happy or fully present in anything I was doing.

    -I experimented off and on with MDMA, LSD, mushrooms, cocaine, and prescription meds like Adderall/vyvanse. But mostly it was just a growing habitual use of pot and alcohol. I did this for about a year and then dwindled slowly over the next year and a half.

    Where I Am Today

    -I have been off pot for several months.

    -I have been running, biking, and doing yoga/stretching (4-6 times per week).

    -I have been going to a mental therapist for a few months approximately every other week. I finally hit rock bottom in regards to my mental illness a few months back and told my parents about it and began to do research. I found some success stories of people who overcame HOCD (until this point I had no idea anyone else had suffered from this…what a relief that was to not feel alone anymore!!). Here are some links if you are curious (you can also just google “HOCD success stories”): How i beat HOCD, works for any OCD so simple : Obsessive Compulsive Disorder (OCD) Forum - Psych forums
    Walking the Hell - HOCD | Reuniting

    -I have taken on a much healthier diet with more veggies, whole grains, fruits and far less meat. This was inspired by a girl I’ve been dating recently as well as understanding how important it is to be at optimum health in order for my body to have the resources it needs to heal.

    -I take vitamins (Alive’s one a day), L-arginine (2 at night, 2 in morning), and CO-Q10 (2 at night, 2 in morning)

    -On July 13, I began buttersketch’s 90-day routine of no masturbation, no sex, and no porn alongside MinuteMan’s pelvic balance routine. This is my most sincere effort ever to overcome the repercussions of my injury’s symptoms. (involuntary kegals, PremE, weak orgasms)

    -I am also using a heat pad as often as I can (2-4 times per week) for 10-20 minutes. I’m applying it with Castor oil on cotton wool and trying to stretch/break down the scar tissue at the base of my penis that has caused the curve. I’m being very gentle and careful here. If I could improve the curve even slightly, I would consider it a miracle which would provide some hope for many others with Peyronies. I’m also doing some gentle massaging in the shower under hot water.

    -Just some extra info, I’ve been very blessed with supporting parents who didn’t cut me off financially right after college, so I spent about a year and a half just teaching some guitar lessons in order to pay for some food and gas and whatnot (only about 5 hours per week though). However, the second chakra, which is the sacral chakra (dealing with your sexual organ), has much to do with blame, guilt, money, sex, power, control, creativity, and morality (YOGA The 2nd Chakra - Svadhisthana - Introduction - Part 1). I realized in my “bum” lifestyle how depressed I really was and just recently decided to get a job serving tables to supplement my lesson money. I want to be as financially independent as possible. It’s already making me feel more comfortable, centered, alive, and myself again…I’m finding it amazing and empowering how much everything in life is correlated. BALANCE people…BALANCE!! That, I am learning, is key.

    -Also, I went through some serious spiritual searching/awakening around November of last year after reading “Be Here Now” by Ram Dass. I began meditating and going on a journey inward. I realize now that it was preparing/leading me to hitting rock bottom a few months ago. Now I can confidently say that I’m on my journey outward to live out my truest desires and dreams in life.

    Some books that have helped me along the way (with depression, anxiety, OCD/intrusive thoughts):

    - “Super Brain” by Deepak Chopra/Rudolph Tanzi
    - “The Untethered Soul” by Michael Singer
    - “You Are Not Your Brain” by Jeffrey Schwarts/Rebecca Gladding (currently reading)
    - “Feeling Good” by David Burns (seems very thorough even though I didn’t get very far before starting the simpler, “You Are Not Your Brain”)

    It is my deepest wish that this will really help somebody out there!! Please comment, ask questions, give advice regarding anything I have talked about…really anything is welcome and I appreciate the opportunity to track my progress here and get help from experienced PEgymers. I am treating this somewhat like an experiment/study for others to learn from so I want to be as thorough as possible and do everything I can to see whatever improvement I can. Let me know your thoughts!

    I know, I know, that was the start to a novel. Thanks for reading if you made it this far.

    Cheers,
    Voodoo
    "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
    -Voodoo
    therebornman.tumblr.com

  • #2
    Sounds like you're getting a grip on all your issues, glad to hear it

    Have you thought about taking Pentox (I think it's called Trendal or Trental in US). It has helped a lot of people on the Peyronies Society forum. They usually use it in conjunction with either an extender or VED.

    A lot of people on that forum have reported a reduction in curvature and gained back some length and girth.

    I too am on a mission to recover from an injury sustained 2 years ago. Only difference is, I have no idea what caused mine.

    It sounds like you've been through a lot bruv so it's good to see you on the up

    Comment


    • #3
      Thanks man, the encouragement and support is very much appreciated! I am going to look into Pentox/Trendal as you mentioned. This is something I would need a prescription for I assume?

      Also, hope your healing comes full circle as well. Gah I wish I had taken a healthier course of action before now... :/
      "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
      -Voodoo
      therebornman.tumblr.com

      Comment


      • #4
        Yeah I know that feeling, I wish I took more positive action straight away too

        Yeah in the UK where I'm from, Pentox requires a prescription.

        I'm not yet on it but it's my mission to get it prescribed at my next urologist appointment. In that Peyronies Forum they have links to studies that proved its effectiveness and they encourage you to take them to the Doctor/Urologist.

        Many members have had positive experiences on it even when beginning it many years after the initial injury. So at least there is hope.

        After all, any improvement at all is a positive

        Comment


        • #5
          Yea for sure, thanks man... I've got an appointment with a new urologist in a couple of weeks. I'm gonna try to get that prescription for pentox. I'll let you know how it turns out.

          Also, I think I need to get some blood tests done. What are all the different things I should be getting results on? Testosterone levels... what else?
          "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
          -Voodoo
          therebornman.tumblr.com

          Comment


          • #6
            UPDATE:

            Added some supplements based on kingpole's "the 5 G's":

            -Gingko Biloba
            -Green Tea Caps
            -Ginger Caps
            -Oderized Garlic Caps

            I've only taken one round of each. I'm still searching for:

            -American Ginseng

            I will update my results after a few days or so on all this stuff.
            "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
            -Voodoo
            therebornman.tumblr.com

            Comment


            • #7
              I was sent to an endocrinologist for bloods, maybe you could ask to see one? They deal with hormones. I have high Prolactin but normal Test, Estrogen etc.

              My Prolactin is crazy high but they told me they don't take action until you start producing milk (like wtf right?). Prolactin can be raised due to excessive stress or tumors (quite common and usually benign) on the pituitary gland. I've certainly been stressed with all this.

              Hopefully your uro will send you for some a doppler and an mri to establish whether there is adequate bloodflow and the location of any scar tissue.

              Sounds like you're doing all you can at the moment really. Perhaps at some point you could start carefully using a 3 cylinder VED as another form of penile rehabilitation, just to encourage blood flow (although a medical grade VED is not cheap, mine set me back about Ł200). It is supposed to, in conjunction with Pentox, help remould the scar tissue by stretching it. From what I've read this takes months/years of daily use but has apparently really worked in reducing curvature for a number of people.

              Best of luck bruv, keep us updated as to how your appointment at the uro goes

              Comment


              • #8
                Thanks lonewolf, really appreciate your input/participation in all this. I'd be feeling a bit left in the wind if you hadn't jumped on board. Mucho gracias brotha.
                "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
                -Voodoo
                therebornman.tumblr.com

                Comment


                • #9
                  No worries voodoo, it helps to feel less isolated. It's not something you can easily talk openly about without being effectively anonymous, so the internet is a perfect platform for this.

                  Keep us posted how it goes. My issues seem to vary day to day so I do think tension from stress certainly exacerbates the situation.

                  Easier said than done to keep a clear head though right?

                  Good luck with your uro appointment bruv and if you make any advances let us know

                  Comment


                  • #10
                    I have to say, the new supplements I just added seem to be helping noticeably (Ginkgo Biloba, Green Tea, Ginger, and Garlic...still trying to locate that American Ginseng). Last night I was out at a party and I was having trouble not getting too turned on by the ladies. Normally I'm stuck in a self-conscious (often HOCD) world and thinking too much and therefore not even able to be confident with my sexuality in public places (which manifests in shy mannerisms and difficulty being fully present for interactions).

                    I think this abstinence thing is really helping me feel comfortable in my own skin again as well as proving to me that I CAN and DO get rock hard erections (naturally without effort) that could very easily please a girl. Seriously, having not ejaculated for three weeks, my erections have improved tremendously. I'm also having less involuntary kegals to maintain erections due to the pelvic floor exercises and I think also the yoga/foam rolling I've been doing. I'm having less and less anxiety about my condition every week and therefore more confidence (or more confidence and therefore less anxiety, however you want to spin it).

                    For anybody with PremE, head problems, low EQ, Peyronies, etc... I would highly recommend beginning a path of no porn and complete abstinence as well as pelvic floor balancing and a healthy diet/active lifestyle. I'm too early in the process to give definitive results, but the positive indicators I've had thus far are extremely encouraging...not to mention I'm healthier than I've been physically and mentally in a long time.
                    "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
                    -Voodoo
                    therebornman.tumblr.com

                    Comment


                    • #11
                      Alright, just picked up some top of the line Korean Ginseng from a local herb supplier. Just took one this afternoon and I have to say I'm feeling pretty damn good and hanging loooow haha. All these supplements are really helping with the hard flaccid though it does still get me sometimes. Night and morning wood are starting to return, though not 100% yet. I definitely think the abstinence/no porn thing is working wonders even in this short amount of time. Almost at the one month mark!
                      "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
                      -Voodoo
                      therebornman.tumblr.com

                      Comment


                      • #12
                        Following your lead voodoo. Hoping to replicate your positive results

                        I'm only four days in but it's a start. Ginseng is the shiznit btw. I'm might get back on the greentea too.

                        Comment


                        • #13
                          Nice lonewolf! Four days is four days man. And yea ginseng is definitely A+ in my book...as well as the other 4 G's honestly. Don't know what is working the most, but in combination with everything else I'm doing in regards to my lifestyle choices, I'm definitely feeling extra healthy and noticing significant improvements after this first month.

                          Hell, tonight I had to go sit in an ABC class to get my alcohol license for my serving job and I had enough confidence to talk to the only two attractive girls there during the breaks. Seriously wanted to ask one of them out for drinks but I don't want to make getting through the next two months any more difficult on myself than it already is going to be. That being said though, I'm feeling good because my engine is revving under the hood! haha... really can't imagine how I'm going to feel after another 60 days.
                          "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
                          -Voodoo
                          therebornman.tumblr.com

                          Comment


                          • #14
                            UPDATE:

                            I went to a new urologist a few days ago and got blood testing done as well as a prescription for Pentox. I just picked it up and will start taking one 400mg pill every night before bed. The pharmacist confirmed that the supplements I am currently taking are ok in conjunction with Pentox. So, we'll see how I feel once I start. I've heard there can be some pretty serious side effects in certain individuals. I am hopeful though that my current state of health will reduce this possibility. I'll let you all know about the blood results once I find out.

                            Also, just FYI, the urologist I went to gave me the same bullshit spiel that the other two gave me about how it's probably "blah blah" and you just need to take "blah blah (cialis)" to heal it. However, I was prepared for this before going in, so I just looked at him and was like "no, I've been told that before, gone that route before, but that's not why I'm here today." I told him all the stuff I'm doing based on the research I've done and then requested a blood test, doppler test, and a prescription for Pentox. He just looked at me kind of like "who do you think you are?" Haha. It was pretty funny because he just wanted to get me in and out in 5 minutes with a prescription for Cialis and act like he knew exactly what was wrong with me. I'm not generalizing all Urologists, but my three experiences have been the most bullshit excuse for "professional care" that I've ever heard of. You could train a monkey to say these things to every guy who walked in with "penis problems." It's pretty sad really.

                            SO, my ADVICE...if you are going to see a urologist, go in with knowledge and an agenda. Make the trip count. Don't take "cialis" for an answer, though it definitely might help some individuals in certain situations. Be prepared for them to try to get you in and out and make sure you don't allow that to happen before getting what you need.

                            Unfortunately he can't do a doppler test, so he referred me to yet another urologist. I'm gonna see how this Pentox fairs and then decide if I still want the doppler.

                            Over and out,
                            Voodoo
                            "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
                            -Voodoo
                            therebornman.tumblr.com

                            Comment


                            • #15
                              UPDATE:

                              I cracked around the end of August and masturbated. I was disappointed in myself for letting it all go like that. I've since masturbated probably about 5-7 times in the past few weeks. As of several days ago though, I have gotten back on course.

                              Here is what I learned through this:

                              Even though I wasn't letting myself ejacuate, I did let myself watch porn occasionally to "check" my arousal levels and erection quality. So I have to say, I didn't fully commit to the no porn thing. I started caving after a few weeks and used the excuse that "well as long as I don't ejaculate, it's ok." I found that I grew weaker in the whole thing and that's why I think I finally cracked. It was not fair to myself to expect that I could "watch porn" and not ejaculate.

                              I now have a deeper understanding of how subtle this addiction can sometimes permeate my psyche to the point that I don't even realize I'm back in the "problem". I somehow flip without realizing it and all the sudden porn seems like an "ok" thing to do.

                              So now that I have recommitted to no porn and no masturbation, I have a stronger understanding of what I am up against. There is nothing easy about going through this transformation after years and years of over masturbation and porn use. Nothing worth going through is easy though.

                              On another note however, my psychological state has been improving immensely. I am much more confident in my sexuality and feel comfortable relaxing in my own skin. It's a great feeling after so many years of severe depression and anxiety.

                              Also the pentox seems to be helping. I will update again as I make more progress. I'm trying to not be too hard on myself about breaking my commitment because it only makes me feel bad and not want to move forward with it again. So I'm accepting what I did and moving on. Even more determined this time around.

                              Voodoo
                              "The website below is my story and insight on recovering from 11 years of debilitating sexual dysfunction. Underneath your issues you are already healed. Remember that. I hope it helps. Much love fellas."
                              -Voodoo
                              therebornman.tumblr.com

                              Comment

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