ED still persists..

[frzntundra Member Find all posts View Profile Close frzntundra]

Hello all,

I started experiencing ED at the beginning of this year and made multiple posts on this forum regarding the issue. Long story short.. I lost my erection after a jelqing session in January. I started experiencing ED along with penile numbness at this point. Seen multiple urologists. Had a doppler ultrasound which showed "normal" blood flow limits with and without the intracavernosal injection. I'm getting the common response from them that I know others have gotten as well: "It's all in your head."

Over 10 months later, I feel like any progress that was made has diminished. Morning wood is seldom; when I do get it, it's maybe 30-40% full. Penile sensitivity is horrible. Somedays I can feel a pinprick, but following days I feel nothing. When I masturbate, I can stay hard with stimulation for maybe 5 minutes. After the 5 minute mark, I go limp no matter how much stimulation I use. Without any stimulation, I go from rock hard to limp in maybe 10-15 seconds. When I remove stimulation, I can basically see the blood running out of my shaft. My unit twitches as I rapidly lose my erection.

I have removed this situation from my mind for the last 2 months. I've barely masturbated (<4 times) during this time period. I've been religiously taking L-arginine, gingko biloba, and green tea on a daily basis. Have been doing tons of cardio for better circulation. Decided to masturbate today since my confidence has been boosted over the last couple months. It was honestly the worst masturbation session I'd ever had.

I'm desperate for any help, guys. Any stories about similar situations that have shown improvements would be wonderful. I really don't know where to go from here.. Any help appreciated, thanks.

[Pegasus AdministratorPE Gym EditorPEGym Hero ☺ Admin of the Month Mar 2015 Find all posts View Profile Close Pegasus]

Have you seen a physiotherapist who does pelvic floor work? Have you done kegels or reverse kegels or hindi squat?

[frzntundra Member Find all posts View Profile Close frzntundra]

Thanks for the response. Yes, I saw a pelvic floor PT for a good 10-15 sessions. She said my pelvic floor was tight, so we worked on loosening those muscles up a bit. Worked on reverse kegels and manual muscle release. Showed little to no improvement concerning my ED.

She said normal kegels would be counterintuitive considering the strength of those muscles already.

[Cokafor Senior Member Find all posts View Profile Close Cokafor]

Huh? Improvement in 1 session? Try 100 sessions to see improvement. Ive been suffering all of your symptoms for 10 years. Consider yourself lucky as it is a fairly new situation and should not be hard to reverse with a dedicated routine

[frzntundra Member Find all posts View Profile Close frzntundra]

I don't think you read my full response. I saw a pelvic floor PT for 10-15 sessions until I saw improvements in the tonicity of my pelvic floor. I got discharged from PT since there was nothing more the PT could do to help my issue. Sure, my pelvic floor loosened up and biofeedback scores went from "abnormal" to "normal," but the main reason I went to the PT did not get solved.

Just saying.. someone would have to have a severe condition to go to a PT for 100 sessions and see no improvement. The PT demonstrated exercises to supposedly help my issue, but the real improvement in my tight pelvic floor came after I was able to do the exercises by myself on a regular basis.

And to say this shouldn't be hard to reverse with a dedicated routine is a bizarre statement.. I have done every tip and trick I could find online to help this issue, the most radical being no PMO. My ED was more apparent after ending my no PMO streak, so I'm not sure what "routine" you're referring to.

[Pegasus AdministratorPE Gym EditorPEGym Hero ☺ Admin of the Month Mar 2015 Find all posts View Profile Close Pegasus]

Sure sounds like head issues are involved to me .

The physical part is often the simplest to resolve . Guys have a tendancy to want it to be physical and resist the idea of a mental component .

Here is the thing with rk only routines they will relax the pelvic floor but can lower libido and eq.

[frzntundra Member Find all posts View Profile Close frzntundra]

I know it sounds like a head issue.. and I've tried telling myself that it is.

But something just seems really off about this. When I masturbated today, I felt my shaft pulsate after I stopped stimulation. This signaled the loss of blood from my unit. Went from rock hard to soft in 15 seconds max. This isn't normal whatsoever. I am convinced that my doppler ultrasound showed false results. During the study, I was unable to get a full erection but was able to sustain an 80% erection for a good 10 minutes with no blood outflow. Concerning the couple studies I've reviewed online concerning the efficacy of the doppler ultrasound, it is frequently stated that diseased or damaged blood vessels will not be able to achieve full erection, but it may be partial. It is also stated that the test has a tendency to display "false positives" of venous leak.

I really don't know what to think.

[joeeeee Member Find all posts View Profile Close joeeeee]

I have the same problems as you man, although i can't find a pelvic floor physio around my area. I hope you find a solution, it is one of the worst things that can happen to a man if not the worst!

[frzntundra Member Find all posts View Profile Close frzntundra]

I assume you were asking me for an update, so here goes haha.

EQ is still really shitty. Went a week without PMO, but cracked today. First jerk off session was so-so, little easier to keep up but still a bad EQ. Second round was awful. I was semi-hard/limp for a majority of it. I really want to eliminate PMO from my life to see if that helps, but I keep relapsing :/

This issue has been going on for over a year now. I have an appointment with the head andrologist at Mayo Clinic in a couple weeks, so hopefully I will get some answers then. I told the intake specialist my symptoms and expressed my concern over how many doctors I've seen. They usually reserve this doc for the most extreme cases, so they apparently think I qualify to see him. Fingers crossed.

[Jay1983 Senior MemberMember of the Month Apr 2014, Sept 2016 Find all posts View Profile Close Jay1983]

So your pelvic floor is no longer tense? Have you started a kegel/RK routine?

Start doing kegels, just don't do them as hard as you can.. kegels are important!

Do you still get numbness/loss of sensation?

[frzntundra Member Find all posts View Profile Close frzntundra]

According to biofeedback, my PF is in the "normal" limits. I can notice a significant difference as well. Yes, I've been working on kegels and RK. Something I noticed with my kegels.. Before my ED, I almost always held a kegel so I could get extremely hard. Never had a problem holding this, so I'm thinking this played a big factor in the PF tightness. Now, my kegels are weak and I find it really difficult to hold one longer than a second or 2.

Overall my numbness/sensation has improved. Not sure if I documented this somewhere in the thread, but my hot/cold and pain sensations are both about 90-95% back to normal. Touch is still minimal, though.

I'm really psyching myself up over a possible venous leak, but I saw the uro who performed the test last week and he is still positive I don't have one. Just seems really odd.. When I jerked off today, I could literally see the blood rushing out of my cock when physical stimulation stopped. Hard to describe, but I could see it losing length and girth within seconds.

[HansTwilight Retired ModeratorPE Gym Editor Member of the Month Jan 2017PEGym Hero Find all posts View Profile Close HansTwilight]

I assume you were asking me for an update, so here goes haha.

EQ is still really shitty. Went a week without PMO, but cracked today. First jerk off session was so-so, little easier to keep up but still a bad EQ. Second round was awful. I was semi-hard/limp for a majority of it. I really want to eliminate PMO from my life to see if that helps, but I keep relapsing :/

This issue has been going on for over a year now. I have an appointment with the head andrologist at Mayo Clinic in a couple weeks, so hopefully I will get some answers then. I told the intake specialist my symptoms and expressed my concern over how many doctors I've seen. They usually reserve this doc for the most extreme cases, so they apparently think I qualify to see him. Fingers crossed.

One week w/o PMO won't do it, you need 2 at the very least. Not only that, but you went twice. If you keep relapsing then see a counselor, you may have a problem.

[HansTwilight Retired ModeratorPE Gym Editor Member of the Month Jan 2017PEGym Hero Find all posts View Profile Close HansTwilight]

According to biofeedback, my PF is in the "normal" limits. I can notice a significant difference as well. Yes, I've been working on kegels and RK. Something I noticed with my kegels.. Before my ED, I almost always held a kegel so I could get extremely hard. Never had a problem holding this, so I'm thinking this played a big factor in the PF tightness. Now, my kegels are weak and I find it really difficult to hold one longer than a second or 2.

Overall my numbness/sensation has improved. Not sure if I documented this somewhere in the thread, but my hot/cold and pain sensations are both about 90-95% back to normal. Touch is still minimal, though.

I'm really psyching myself up over a possible venous leak, but I saw the uro who performed the test last week and he is still positive I don't have one. Just seems really odd.. When I jerked off today, I could literally see the blood rushing out of my cock when physical stimulation stopped. Hard to describe, but I could see it losing length and girth within seconds.

Your're anxious now, good luck getting erect when you are in this mindset. That doc knows more about venous leaks than you do and you are just challenging his knowledge which is not in your place to do so with all due respect. Relax.

[frzntundra Member Find all posts View Profile Close frzntundra]

One week w/o PMO won't do it, you need 2 at the very least. Not only that, but you went twice. If you keep relapsing then see a counselor, you may have a problem.

I'm sure I have a porn addiction, but I really feel like something else is going on as well. I could be wrong, but most guys with PIED seem to be able to keep an erection with porn, which I can't do without constant stimulation. It sometimes comes to the point that simulation doesn't help, and I can't avoid going completely limp.

I do realize my addiction though, so I guess that's the first step in "recovering." It's just really frustrating having this go on for over a year while having to keep a good composure for family, school, and work. On a positive note, my anxiety and depression have significantly diminished in the last month. Since I've been dealing with this for so long, I think my minds takes it as my new "normal," so I'm not plagued by my psyche as much.

[HansTwilight Retired ModeratorPE Gym Editor Member of the Month Jan 2017PEGym Hero Find all posts View Profile Close HansTwilight]

I'm sure I have a porn addiction, but I really feel like something else is going on as well. I could be wrong, but most guys with PIED seem to be able to keep an erection with porn, which I can't do without constant stimulation. It sometimes comes to the point that simulation doesn't help, and I can't avoid going completely limp.

I do realize my addiction though, so I guess that's the first step in "recovering." It's just really frustrating having this go on for over a year while having to keep a good composure for family, school, and work. On a positive note, my anxiety and depression have significantly diminished in the last month. Since I've been dealing with this for so long, I think my minds takes it as my new "normal," so I'm not plagued by my psyche as much.

That's not true, I couldn't keep an erection regardless if I watched porn or not when I had PIED.
That is the first step, realizing you have a problem and then trying to do something about it. I suggest you get into an objective devoted mindset. "Be a man and handle the urges" say that to yourself. Don't let them overtake you .