Venous Leak, 29 Years Old, Low Testosterone?

[Converse13 Junior Member Find all posts View Profile Close Converse13]

Hello all,

First time posting here, and I'm really impressed with this forum. Thank you all for your help.

I've been a venous leak sufferer my entire life. When I was 17-18 and I would only get 50% erections that are not strong enough for penetration, I knew something was wrong. Never got morning wood or nighttime erections.

I've been using Viagra/Cialis since I was 19, so about 10 years now. Viagra works perfect, and Cialis works okay. I'm concerned about building a tolerance in the long run, but hopefully that never happens. I've been getting the Viagra and Cialis through unethical means, but its just so damn expensive otherwise.

I recently got the courage to see a doctor, so went to my general practitioner for the first time and told him about my ED. He did a whole battery of tests, including a few testosterone tests. The lab he used was Quest Labs. He told me everything was normal, but now that I read this forum I'm not sure he's correct. I then went to a Urologist to tell him my story, and he told me I had venous leak, and that he could do a cavernosgraphy or something to confirm, but based on what I told him, he's sure it's a venous leak, so I didn't do the cavernosgraphy.

Here are my test results. Do they seem normal? Why is there such a big discrepancy between my Total Testosterone levels under the two different tests? I googled the testosterone two tests, and it's unanimous that the LC/MS/MS Test is the more accurate measure for Total Testosterone. Under that test, it seems my testosterone is normal.

Total Testosterone, under the LC/MS/MS Test, is 524 ng/dl.
Total Testosterone, under the immunoassay test, is 353 ng/dl.
Free Testosterone, 70.8 pg/ml
T4 Free, 0.9 ng/dl
Prolactin, 2.5 ng/ml
Binding Globulin, 29 nmol/L
TSH, 1.81 mIU/L


Has my venous leak been a result of low T this whole time? Since I was 18? Jesus Christ.

[CUSP82 Administrator Admin of the Month Dec 2014PEGym Hero Find all posts View Profile Close CUSP82]

Don't you think getting the diagnosis confirmed would be good idea? A true venous leak usually doesn't respond to viagra. By the way did you tell the docs you were taking viagra?

[Converse13 Junior Member Find all posts View Profile Close Converse13]

You're right, I should have had the Urologist confirm the venous leak with a cavernosgraphy, but he was just so sure it was venous leak and couldn't be anything else. He's a leading Urologist in my area specializing in ED and works for a big hospital.

I did tell him I have been taking Viagra and that it was working for me. I take 50mg and I'm 100% normal. If I drink any alcohol, the Viagra works much much less, often not at all.

[GrowStrong Senior Member Find all posts View Profile Close GrowStrong]

Don't you think getting the diagnosis confirmed would be good idea? A true venous leak usually doesn't respond to viagra. By the way did you tell the docs you were taking viagra?

testosterone level changes throughout the day and so two different tests will never be the same. when i had mine checked i went first 470ng/dl then the second was 380ng/dl which is borderline low enough for treatment just like your 350 is. generally if its below 300ng/dl they will treat you with testosterone injections or some form of TRT. otherwise they say your fine, which is bullshit. luckily for me i dont have lowT anymore though, due to my own means, my doctor just pissed me about and didnt take me seriously, so i took things into my own hands.

just keep pushing for treatment, with doctors they try to pass you off as "your fine" but if u keep shouting and screaming they will find it hard to ingnore your case and will eventually treat you. just make sure you dont get pissed about like i did having to wait 10months for a second appointment etc.

[CUSP82 Administrator Admin of the Month Dec 2014PEGym Hero Find all posts View Profile Close CUSP82]

If there was something that someone thought could be wrong with me but he needed a test to prove it I would take the test. Then and only then will you know the truth. Wouldn't it be a shame that you didn't really have a venous leak and that your problem was someplace else that could be treated?

The fact that you were 17 or so when you first noticed this to me is alarming. Venous leaks rarely happen without some history of trauma, and very rarely in young people. Young peoples veins are just too good. Does is happen to some young people? Sure but it's very very rare. The odds of it happening to you is very very remote. Possible but very remote. Maybe at your young age back then just maybe you had a mental thing, like most young guys do, and to prevent yourself from really having sex you created a mental block to prevent a full erection and as time went on you just reinforced it. That is more plausible to me than having a venous leak at your age, especially since viagra works when for most with a leak it doesn't.. Go get a diagnosis!

[Orome Senior Member Find all posts View Profile Close Orome]

The fact that you were 17 or so when you first noticed this to me is alarming. Venous leaks rarely happen without some history of trauma, and very rarely in young people. Young peoples veins are just too good.

Really? The urologist I just saw told me they are typically spontaneous and not usually caused by injury. There seems to be a lot of conflicting information about this subject.

[Big Al AdministratorPEGym EditorMale Enhancement Coach Rep.PEGym Hero Find all posts View Profile Close Big Al]

You're right, I should have had the Urologist confirm the venous leak with a cavernosgraphy, but he was just so sure it was venous leak and couldn't be anything else. He's a leading Urologist in my area specializing in ED and works for a big hospital.

I did tell him I have been taking Viagra and that it was working for me. I take 50mg and I'm 100% normal. If I drink any alcohol, the Viagra works much much less, often not at all.

If your venous leak wasn't confirmed and if you can become erect using Viagra, then where did you get the idea that you had a venous leak?

[Big Al AdministratorPEGym EditorMale Enhancement Coach Rep.PEGym Hero Find all posts View Profile Close Big Al]

Really? The urologist I just saw told me they are typically spontaneous and not usually caused by injury. There seems to be a lot of conflicting information about this subject.

Some potentially helpful data:

https://www.pegym.com/forums/erectil...redictors.html

For those who do have "venous leaks":
https://www.pegym.com/forums/penile-...ous-leaks.html

[CUSP82 Administrator Admin of the Month Dec 2014PEGym Hero Find all posts View Profile Close CUSP82]

Really? The urologist I just saw told me they are typically spontaneous and not usually caused by injury. There seems to be a lot of conflicting information about this subject.

Not typically spontaneous in young people!

[zezeze Senior Member Find all posts View Profile Close zezeze]

A general urologist usually rules out venous leak easier on young people than urologist specializing in ED. In this case it could be venous leak or venous insufficiency. If you are uncertain about the results, why don´t you show them to the ED specialist you mention here? And by all means do Doppler ultrasound to have it confirmed.

[Pegasus AdministratorPE Gym EditorPEGym Hero ☺ Admin of the Month Mar 2015 Find all posts View Profile Close Pegasus]

Venous leak is frequently misdiagnosed.
I would have another hormone test .

[Saskman Senior Member Find all posts View Profile Close Saskman]

my venous leak started at 15 or 16, until that time i could get rock hard erections and had an insane sex drive. i went from aggressive to unassertive. always had bad concetration, brain fog, and never was able to make good gains in the gym. never had sex again without the use of pills.

yeah, your T levels are low in the one test. for me, my first t test was 290 ng/dl and 2nd test was 199 ng/dl, both times, the moronic doctor told me that I was normal. later i had a doppler done (this is 15 years after the problem started) and they confirmed i had a venous leak. later in the day the doc reviewed the testosterone results and had a change of opinion.. and what do you know, low testosterone/hypogonadism is linked to venous leak and t therapy is proven to cure venous leak in the majority of young people with low t and venous leak (just google the subject).

i don't know either. pde5 drugs worked extremely well but now they do not all the time (but sometimes). clomid temporarily cured me but then things subsided, actually getting worse a bit.

i'm doing more tests, such as karyotype and hopefully an MRI soon, regular extensive bloodtests, but I can confirm 100%, clomid by restoring testosterone had cured my venous leak for a week or so, totally increasing the sensitivity and drive. it was surreal for a week.

you need to do more investigating, get more opinions, more bloodwork and that cavernosopgraphy would be ideal.

[Pegasus AdministratorPE Gym EditorPEGym Hero ☺ Admin of the Month Mar 2015 Find all posts View Profile Close Pegasus]

This thread is over a year old .
You might look at natural methods of hormone improvement before going to hrt.

[corageon Banned Find all posts View Profile Close corageon]

my venous leak started at 15 or 16, until that time i could get rock hard erections and had an insane sex drive. i went from aggressive to unassertive. always had bad concetration, brain fog, and never was able to make good gains in the gym. never had sex again without the use of pills.



you need to do more investigating, get more opinions, more bloodwork and that cavernosopgraphy would be ideal.

This thread is over a year old .
You might look at natural methods of hormone improvement before going to hrt.

Shame on you Saskman!

[Pegasus AdministratorPE Gym EditorPEGym Hero ☺ Admin of the Month Mar 2015 Find all posts View Profile Close Pegasus]

Shame on you Saskman!

Oh you are a tease Corgeon , I am sure you will be interested in the results of his hormone tests.