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  • Nerve Issue and Numbness

    Hello,

    I will try to keep this short to respect everyone’s time. I’ve read this site for years and never planned on posting, but I feel like I’m at a point where I need to share my story to see if I can help others or they can help me.

    About 14 years ago when I was 16 I accidentally stretched me penis while masturbating because I didn’t like how it was curved to the left (big mistake). This cause numbness and lack of sensation which freaked me out, but I could still have sex. I started having problems going to the bathroom where I would start and stop when I urinated and strained to start urinating too. This lead to year 3-4 years of doctors saying I had Peyronies.

    When I was 20 I was in a bike accident injuring my penis agin where I fell forward on the bike and had blunt force trauma onto the left side of my penis glands. This is when things got really bad and I had weaker erections, more sensation problems, and penile pain along with all of the urination problems. This scarred me emotionally and mentally as many of you can imagine or relate to.

    10 years later (June of 2017) I injured myself again but it wasn’t directly coorerlated to my penis. I had been working out a lot, more then I ever had been, and I was staining to urinate more then ever too. I had started taking viagra on and off for the erection problems I was having. One night I had a semi erection and I strained very hard to urinate. About a week later my perineal area and left side of my penis were in terrifying pain. The left and now right side of my penis became significantly more numb and I lost a lot of sensation to touch. The numbness and lack of sensation in my glands was the worst ever. The curvature of my penis to the left became worse then ever and I became severely depressed emotionally and mentallly.

    I went to prestigious doctors and clinics in Minnesota to get tested for everything. I even saw Dr. Levine in Chicago, the best Peyronies doctor in the world, to get examined for Peyronies. He examined me through an ultrasound and said I don’t have Peyronies at all and that I have a nerve problem. He said my penis looked great. I used to be 7.5 inches long and 5.5 girth, but since my injury when I was 20 I’m down to about 6.75 with a 5.2 girth. He prescribed me cialis and sent me on my way.

    In July 2017 I started working with a guy in Minnesota who is an expert in a condition called Pudendal Neuralgia, which is what he told me I had. He prescribed me gabapentin and amnitriptyline, which helped with the pain. I had 4 series of steroid injections into my pelvis and pudental nerve. I also stood 7-8 hours a day at work because he said I was putting pressure on the nerve. They were painful but kind of helped my erections and bathroom problems. Eventually he told me the nerve was entrapped and that I would need surgery, which I did not want to do. This doctor and Dr. Levine told me I didn’t need physical therapy and that it wouldn’t really work.

    I looked into PT because I didn’t want surgery. An admin on this site named “Pegasus” was always telling people to check out PT when people described situations similar to mine, so I thought it was worth a shot. So I found a PT who has been working with chronic pelvic pain, especially for men, for over 30 years.

    Everyone on this forum who reads this that has problems similar to mine need to know that this has absolutely changed my life in a positive way. I’ve been doing pelvic floor exercises and having internal pt done through my anal area for only 2 months and I’m able to urinate better then ever. I feel like I’ve been able to urinate better then I have in 14 years. My perineal pain has gone down significantly and my erections have gotten a lot better. I still take a cialis every once in a while but my goal is to be off all meds by this fall. My pain has gone down significantly, I’m urinating normally, but unfortunately my numbness and lack of sensation hasn’t changed that much - any help with this recovering or success stories would be appreciated! My PT said those problems will be healed overtime, but that they will be the last to come back. Nerves can grow back but it takes time and you need to have everything else in the pelvic floor working well to let them heal. She told me it might be a year of PT until I notice sensation coming back and numbness going away.

    I hope this helps some people having any of the same problems. If anyone who’s recovered from nerve problems, numbness, or lack of sensation, please feel free to write a success story or anything I can do to fix the last part of this 14 year problem!

    Thank you for all of your time!

    Matt

  • #2
    Matt, thanks for sharing. I'm glad things have worked out for you in a very positive fashion.
    Original/Current Stats:
    09 / 2017: BPEL 6.75" / NBPEL 6" / MEG 4.75" / BPFSL 7.25"
    09 / 2019: BPEL 7.625" / NBPEL 6.625" / MEG 5" / BPFSL 8.125"

    Realistic Goals:
    BPEL 8" / NBPEL 7.0" / MEG 5.25"

    Comment


    • #3
      Welcome to the forum!

      It's great to hear the advice on this forum has been helpful to you!

      A big thank you to Pegasus if he's reading this!
      Want a FREE Month of Coaching? PM or email me for details- or CLICK HERE

      The MeCoach Male Enhancement Coaching Service- For All of Your Male Enhancement Needs

      Comment


      • #4
        Thank you both! Still not 100% but I’m getting there. Would love any advice on restoring sensation and getting rid of numbness. Anything to help with curvature would help too. It’s not scar tissue because I had that tested. My left side just doesn’t fill up like the right because it’s experienced more trauma.

        Comment


        • #5
          This thread looks promising and may be of interest to you: Need help with herbs/vitamins that promote nerve regeneration
          Want a FREE Month of Coaching? PM or email me for details- or CLICK HERE

          The MeCoach Male Enhancement Coaching Service- For All of Your Male Enhancement Needs

          Comment


          • #6
            Thanks for the props .
            It is possible the sensation will return sooner than the physio things depending on if the nerve impingment is caused by entrapment or if there is damage .
            Al may be able to give ideas re the bend perhaps light jelq against the curve?
            I would think edging would be of value to you , get the blood flowing . Start gently avoid the use of kegels.
            I would stay away from kegel at this time but meditative reverse kegel would be worth looking at . The physio seem to call rk pelvic drop have a talk to your pt about it .

            You mention gym work but not stretches, can i ask how flexible you are? Can you get into hindi squat position ok?
            In case where the pelvic floor is messed up gym work can be an issue and at times muscles have to be retrained to handle physical strain ,especially heavy lifting . In cases like this a personal trainer, or even exercise physiologist can help, again bring it up with the pelvic physio .

            Comment


            • #7
              https://www.pegym.com/forums/prematu...ber-input.html
              https://www.pegym.com/forums/prematu...se-kegels.html

              I have another question . How have you gone about dealing with the head issues you mention?
              Pegasus
              Administrator
              PE Gym Editor
              PEGym Hero
              Admin of the Month Mar 2015
              Last edited by Pegasus; 05-24-2018, 05:07 PM.

              Comment


              • #8
                Originally posted by Pegasus View Post
                https://www.pegym.com/forums/prematu...ber-input.html
                https://www.pegym.com/forums/prematu...se-kegels.html

                I have another question . How have you gone about dealing with the head issues you mention?
                By head issues do you mean how I’m reacting to this mentally or the problems I’m having specifically at the glans of my penis that are the most damage? Haha could kind of go either way!

                Mentally I’m doing better each day because the physical therapy has helped me physically, but having problems on and off for 14 years can do a lot to a guy. It’s fristratimg as all hell that can’t feel 50% of my penis. My PT is convinced it will come back and has taught me the anatomy behind everything, which has calmed me down and given me confidence during sex. I had mastudbated regularly for years and liked watching porn, but now I’m 3 weeks into “NoFap” and I’m trying to go 90 days with only having sex to orgasm and no porn. I’m all in on fixing myself physically and mentally with a holistic approach.

                The glans on the head of my penis are the most frustrating part because they feel like they are the most damaged and numb. Any help on this would be appreciated too!

                Comment


                • #9
                  Can’t thank you enough! I’m glad I found your posts on PT. Doctors misdiagnosed me for 14 years and PT is the only one who has really helped!

                  My PT has me doing reverse kegals now. I’m really tight in the pelvis. Did sit ups for years and have a solid core but that’s gonna be a lifestyle change. Not very flexible at all. She has me starting some light stretches and work on my aductors along with internal rectum work. She has me walking on a treadmill backwards to strengthen specific muscles in my butt that are weak and help blood flow to the penis. More stretches to come a few monghs from now she said but nothing too crazy right now.

                  Comment


                  • #10
                    Update:

                    PT has still been helping me. My bathroom problems are almost gone entirely, I’m in a lot less perineal pain -will probably be pain free in a year- but the sensitivity is taking longer then I’d want. My EQ has improved substantially, even without taking meds for it as much, and I can feel my erections are a lot stronger. The sensitivity has improved a little on the right side but not much on the left. My physio said it could be until never March (when I started PT) before I notice significant improvement with sensitivity.

                    Comment


                    • #11
                      Update - please help!

                      Last night I thought I would give jelqing a try for the first time. I only did the motions for about 4-5 minutes tops. I was Jelqing on the left side to try and make it bigger so that I would eventually lose the curve over months of exercising. I thought I would try the right side so I gave that a shot. I was Jelqing the right side and then grabbed the head of my penis to empty out the blood, then quickly jelqed again (I thought I had read somewhere that that was called a uni or something and was supposed to help girth) when all of the sudden I felt a sharp pain go up the right side of my penis (which was the good side- left side is still numb from all the years of PT problems). I immediately stopped and did the warm wraps. I know this was probably a “noob” move and I should have been more careful.

                      All day today I’ve felt pain and discomfort on the right side. I’ve gone back to the hard flaccid turtles state. The right side of my penis is numb just like my left side. I’m terrified this isn’t going to heal. Any thoughts on what this was? Do we think it was nerve damage? Could it be that I damaged erectile tissue in my glans? It was very sharp pain that lasted about 3 seconds and then became more of numbness/discomfort/mild pain after that. Anyone else have this happen and recover?

                      Comment


                      • #12
                        You tried an advanced move with no condition behind you . Very ill advised . Light jelq is different to a Uli it sounds like a compressor actually . What sort of erection % were you?

                        Firstly stay away from pe for the time being . Avoid masturbation for next few days Avoid panic.

                        Comment


                        • #13
                          Yes that’s what it’s was - a compressor- I forgot the name of it but that’s what it was. Very stupid of me because I was having so much success. I was about 85% erect when it happened because I thought when jelqing you’re supposed to be about that erect. Do you think it was a shock to my nerves? I’m avoiding masturbating/sex, continuing my PT stretches for the pelvic floor, and trying to stay calm but it is very hard to do that! What else should I be doing? Do you think it’s permanent?

                          Comment


                          • #14
                            I would avoid kegels for the time being .

                            I do not think it is permenant .

                            The biggest problem in issues like this is often the anxiety it causes which can have long term effects .

                            If you are going to do pe to sort the curve in future I suggest you hire Big Al as a sort of personal trainer .

                            Comment


                            • #15
                              You guys are hero’s. Thank you for replying! I will keep the thread updated. My PT has me doing reverse kegels 6-8 times a day because I have an overactive pelvic floor. Think I should keep doing those?

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