Hello,
I will try to keep this short to respect everyone’s time. I’ve read this site for years and never planned on posting, but I feel like I’m at a point where I need to share my story to see if I can help others or they can help me.
About 14 years ago when I was 16 I accidentally stretched me penis while masturbating because I didn’t like how it was curved to the left (big mistake). This cause numbness and lack of sensation which freaked me out, but I could still have sex. I started having problems going to the bathroom where I would start and stop when I urinated and strained to start urinating too. This lead to year 3-4 years of doctors saying I had Peyronies.
When I was 20 I was in a bike accident injuring my penis agin where I fell forward on the bike and had blunt force trauma onto the left side of my penis glands. This is when things got really bad and I had weaker erections, more sensation problems, and penile pain along with all of the urination problems. This scarred me emotionally and mentally as many of you can imagine or relate to.
10 years later (June of 2017) I injured myself again but it wasn’t directly coorerlated to my penis. I had been working out a lot, more then I ever had been, and I was staining to urinate more then ever too. I had started taking viagra on and off for the erection problems I was having. One night I had a semi erection and I strained very hard to urinate. About a week later my perineal area and left side of my penis were in terrifying pain. The left and now right side of my penis became significantly more numb and I lost a lot of sensation to touch. The numbness and lack of sensation in my glands was the worst ever. The curvature of my penis to the left became worse then ever and I became severely depressed emotionally and mentallly.
I went to prestigious doctors and clinics in Minnesota to get tested for everything. I even saw Dr. Levine in Chicago, the best Peyronies doctor in the world, to get examined for Peyronies. He examined me through an ultrasound and said I don’t have Peyronies at all and that I have a nerve problem. He said my penis looked great. I used to be 7.5 inches long and 5.5 girth, but since my injury when I was 20 I’m down to about 6.75 with a 5.2 girth. He prescribed me cialis and sent me on my way.
In July 2017 I started working with a guy in Minnesota who is an expert in a condition called Pudendal Neuralgia, which is what he told me I had. He prescribed me gabapentin and amnitriptyline, which helped with the pain. I had 4 series of steroid injections into my pelvis and pudental nerve. I also stood 7-8 hours a day at work because he said I was putting pressure on the nerve. They were painful but kind of helped my erections and bathroom problems. Eventually he told me the nerve was entrapped and that I would need surgery, which I did not want to do. This doctor and Dr. Levine told me I didn’t need physical therapy and that it wouldn’t really work.
I looked into PT because I didn’t want surgery. An admin on this site named “Pegasus” was always telling people to check out PT when people described situations similar to mine, so I thought it was worth a shot. So I found a PT who has been working with chronic pelvic pain, especially for men, for over 30 years.
Everyone on this forum who reads this that has problems similar to mine need to know that this has absolutely changed my life in a positive way. I’ve been doing pelvic floor exercises and having internal pt done through my anal area for only 2 months and I’m able to urinate better then ever. I feel like I’ve been able to urinate better then I have in 14 years. My perineal pain has gone down significantly and my erections have gotten a lot better. I still take a cialis every once in a while but my goal is to be off all meds by this fall. My pain has gone down significantly, I’m urinating normally, but unfortunately my numbness and lack of sensation hasn’t changed that much - any help with this recovering or success stories would be appreciated! My PT said those problems will be healed overtime, but that they will be the last to come back. Nerves can grow back but it takes time and you need to have everything else in the pelvic floor working well to let them heal. She told me it might be a year of PT until I notice sensation coming back and numbness going away.
I hope this helps some people having any of the same problems. If anyone who’s recovered from nerve problems, numbness, or lack of sensation, please feel free to write a success story or anything I can do to fix the last part of this 14 year problem!
Thank you for all of your time!
Matt
I will try to keep this short to respect everyone’s time. I’ve read this site for years and never planned on posting, but I feel like I’m at a point where I need to share my story to see if I can help others or they can help me.
About 14 years ago when I was 16 I accidentally stretched me penis while masturbating because I didn’t like how it was curved to the left (big mistake). This cause numbness and lack of sensation which freaked me out, but I could still have sex. I started having problems going to the bathroom where I would start and stop when I urinated and strained to start urinating too. This lead to year 3-4 years of doctors saying I had Peyronies.
When I was 20 I was in a bike accident injuring my penis agin where I fell forward on the bike and had blunt force trauma onto the left side of my penis glands. This is when things got really bad and I had weaker erections, more sensation problems, and penile pain along with all of the urination problems. This scarred me emotionally and mentally as many of you can imagine or relate to.
10 years later (June of 2017) I injured myself again but it wasn’t directly coorerlated to my penis. I had been working out a lot, more then I ever had been, and I was staining to urinate more then ever too. I had started taking viagra on and off for the erection problems I was having. One night I had a semi erection and I strained very hard to urinate. About a week later my perineal area and left side of my penis were in terrifying pain. The left and now right side of my penis became significantly more numb and I lost a lot of sensation to touch. The numbness and lack of sensation in my glands was the worst ever. The curvature of my penis to the left became worse then ever and I became severely depressed emotionally and mentallly.
I went to prestigious doctors and clinics in Minnesota to get tested for everything. I even saw Dr. Levine in Chicago, the best Peyronies doctor in the world, to get examined for Peyronies. He examined me through an ultrasound and said I don’t have Peyronies at all and that I have a nerve problem. He said my penis looked great. I used to be 7.5 inches long and 5.5 girth, but since my injury when I was 20 I’m down to about 6.75 with a 5.2 girth. He prescribed me cialis and sent me on my way.
In July 2017 I started working with a guy in Minnesota who is an expert in a condition called Pudendal Neuralgia, which is what he told me I had. He prescribed me gabapentin and amnitriptyline, which helped with the pain. I had 4 series of steroid injections into my pelvis and pudental nerve. I also stood 7-8 hours a day at work because he said I was putting pressure on the nerve. They were painful but kind of helped my erections and bathroom problems. Eventually he told me the nerve was entrapped and that I would need surgery, which I did not want to do. This doctor and Dr. Levine told me I didn’t need physical therapy and that it wouldn’t really work.
I looked into PT because I didn’t want surgery. An admin on this site named “Pegasus” was always telling people to check out PT when people described situations similar to mine, so I thought it was worth a shot. So I found a PT who has been working with chronic pelvic pain, especially for men, for over 30 years.
Everyone on this forum who reads this that has problems similar to mine need to know that this has absolutely changed my life in a positive way. I’ve been doing pelvic floor exercises and having internal pt done through my anal area for only 2 months and I’m able to urinate better then ever. I feel like I’ve been able to urinate better then I have in 14 years. My perineal pain has gone down significantly and my erections have gotten a lot better. I still take a cialis every once in a while but my goal is to be off all meds by this fall. My pain has gone down significantly, I’m urinating normally, but unfortunately my numbness and lack of sensation hasn’t changed that much - any help with this recovering or success stories would be appreciated! My PT said those problems will be healed overtime, but that they will be the last to come back. Nerves can grow back but it takes time and you need to have everything else in the pelvic floor working well to let them heal. She told me it might be a year of PT until I notice sensation coming back and numbness going away.
I hope this helps some people having any of the same problems. If anyone who’s recovered from nerve problems, numbness, or lack of sensation, please feel free to write a success story or anything I can do to fix the last part of this 14 year problem!
Thank you for all of your time!
Matt
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