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  1. 10-08-2015 #11
    CUSP82
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    Is not the cure more important than the cause?
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    The world's still a toy if you just stay a boy!
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  2. 10-08-2015 #12
    mikecares
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    Quote Originally Posted by CUSP82 View Post
    Is not the cure more important than the cause?
    People that have gotten hard flaccid from procepia pills do not cure themselves from it in the same way that people have gotten it from prostatitis....I thought this was well established. So yes, the cause is important.
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  3. 10-08-2015 #13
    HFrecovering
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    Quote Originally Posted by mikecares View Post
    People that have gotten hard flaccid from procepia pills do not cure themselves from it in the same way that people have gotten it from prostatitis....I thought this was well established. So yes, the cause is important.
    wrong, obitoo helped people who got it from propecia get better. i think if my memory serves me correctly he talks about it in his book.
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  4. 10-08-2015 #14
    closed224
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    Please look at Voodoochilds threads also.
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  5. 10-08-2015 #15
    HFrecovering
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    Quote Originally Posted by Wishful10x8 View Post
    Please look at Voodoochilds threads also.
    does he mention somthing about propecia or do you just mean look at in general because its helpful?
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  6. 11-16-2015 #16
    CaptainJohnson
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    Partially. It was one of the major contributors, amongst several.
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  7. 11-29-2015 #17
    bens
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    Quote Originally Posted by mikecares View Post
    People that have gotten hard flaccid from procepia pills do not cure themselves from it in the same way that people have gotten it from prostatitis....I thought this was well established. So yes, the cause is important.
    I have post-finasteride syndrome. PFS is much more than just pelvic floor dysfunction. I have generalized motor overactivity throughout my entire body. This helps explain the vast symptoms that we have; not only sexual.

    Treating it is also much trickier than trigger point therapy. Obitoo is a very smart guy and I have learned a lot from him, but I don't think that he has the perspective to be an authority on our condition (beyond the most downstream cause of our sexual symptoms) as we clearly have a sort of CNS sensitization, which affects general motor activity. I personally have stiffness, twitching, and pain everywhere in my body, including the pelvic floor. Twitching in the pelvic floor is not something caused by stress or trigger points. However, I do have severe biomechanical dysfunction that I think predisposed me to developing PFS.

    PFS, in my case, is similar to fibromyalgia. The pill did not target the pelvic floor in particular. It appears to be a neurological/neuromuscular disorder and our pelvic floors are much more overactive and sensitive than the typical HF case.

    Overactivity in the pelvic floor is the cause of our sexual issues. But there is much more to it than that. I am personally investigating botox therapy for the pelvic floor as I cannot imagine fully managing it if the CNS sensitization does not calm down.

    Finasteride inhibits the function of GABA. GABA is an inhibitory neurotransmitter that regulates the interaction between, for example, afferent and efferent neurons in the spinal cord. When we took the drug, everything went haywire because the inhibition of these reflex arcs was greatly impaired.
    Last edited by bens; 11-29-2015 at 05:26 PM.
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  8. 11-29-2015 #18
    bens
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    Also, I joined this forum only because it's one of the few corners of the internet to discuss our condition. I wanted to join the hardflaccid.org community, but it seems that obitoo has no interest in re-opening his forum.

    Is anyone aware of another similar community? Or is PEgym pretty much it?
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  9. 11-29-2015 #19
    mikecares
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    Quote Originally Posted by bens View Post
    I have post-finasteride syndrome. PFS is much more than just pelvic floor dysfunction. I have generalized motor overactivity throughout my entire body. This helps explain the vast symptoms that we have; not only sexual.

    Treating it is also much trickier than trigger point therapy. Obitoo is a very smart guy and I have learned a lot from him, but I don't think that he has the perspective to be an authority on our condition (beyond the most downstream cause of our sexual symptoms) as we clearly have a sort of CNS sensitization, which affects general motor activity. I personally have stiffness, twitching, and pain everywhere in my body, including the pelvic floor. Twitching in the pelvic floor is not something caused by stress or trigger points. However, I do have severe biomechanical dysfunction that I think predisposed me to developing PFS.

    PFS, in my case, is similar to fibromyalgia. The pill did not target the pelvic floor in particular. It appears to be a neurological/neuromuscular disorder and our pelvic floors are much more overactive and sensitive than the typical HF case.

    Overactivity in the pelvic floor is the cause of our sexual issues. But there is much more to it than that. I am personally investigating botox therapy for the pelvic floor as I cannot imagine fully managing it if the CNS sensitization does not calm down.

    Finasteride inhibits the function of GABA. GABA is an inhibitory neurotransmitter that regulates the interaction between, for example, afferent and efferent neurons in the spinal cord. When we took the drug, everything went haywire because the inhibition of these reflex arcs was greatly impaired.
    Are you able to get erections at all with your symptoms?
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  10. 11-29-2015 #20
    bens
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    Quote Originally Posted by mikecares View Post
    Are you able to get erections at all with your symptoms?
    Most of the time yeah. When I first developed PFS, my symptoms were so bad that I did experience impotence. Now I rarely experience it, but EQ and maintenance still suffer.

    A few months after developing PFS I diagnosed a muscular problem in my back that I think predisposed me to developing PFS. Partially fixing that has greatly improved my symptoms.

    My symptoms vary between say 90% and complete dysfunction (no pleasurable sensation, severe hard flaccid, no libido, severe ED).

    I'm very sensitive to pain so it is easy for me to tell how overactive my pelvic floor is. My symptoms vary with the level of tension in my pelvic floor.
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