Hard flaccid forum?

[mikecares]

Most of the time yeah. When I first developed PFS, my symptoms were so bad that I did experience impotence. Now I rarely experience it, but EQ and maintenance still suffer.

A few months after developing PFS I diagnosed a muscular problem in my back that I think predisposed me to developing PFS. Partially fixing that has greatly improved my symptoms.

My symptoms vary between say 90% and complete dysfunction (no pleasurable sensation, severe hard flaccid, no libido, severe ED).

I'm very sensitive to pain so it is easy for me to tell how overactive my pelvic floor is. My symptoms vary with the level of tension in my pelvic floor.

So can you still have sex? Why do you think some people (like my self) can get normal erecitions with HF and still have adequate sex while other cannot? Seems like the psychology part is playing a large role in this aspect.

[bens]

So can you still have sex? Why do you think some people (like my self) can get normal erecitions with HF and still have adequate sex while other cannot? Seems like the psychology part is playing a large role in this aspect.

I can still have sex. The quality of it is highly variable though.

I already attempted to answer your 2nd question. Pelvic floor dysfunction is a syndrome and some seem to be much more sensitive to developing certain symptoms than others.

Some can have severe pelvic pain with no other symptoms. Some can have hard flaccid with no other symptoms. Some can have sexual dysfunction with no other symptoms. Some, like me, have every symptom in the book.

"Hard flaccid" is apparently a response to tension in the ischiocavernosus muscles. There are many more muscles in the pelvic floor. The ischiocavernosus muscle is not even innervated by the dorsal nerve (the branch of the pudendal nerve that supplies the penis). You can have tension in the ischiocavernosus muscle without significant tension in the other muscles of the pelvic floor. For example, the superficial and transverse perineal muscles, obturator internus, etc.

Pelvic floor dysfunction is a highly multivariable disorder. I am not sure why you are trying to attribute many of the symptoms to a psychological origin. Maybe you are paranoid of it progressing and take comfort in the thought that these symptoms don't actually exist. I just ask that you don't attempt to marginalize the condition as the symptoms can be devastating in the most severe cases.

I would like awareness of the condition to grow. Urologists are seemingly clueless for the most part and potential treatments (other than biomechanical correction, trigger point therapy, and stress management, which are not silver bullets in many of us) are seemingly unexplored.

[mikecares]

I can still have sex. The quality of it is highly variable though.

I already attempted to answer your 2nd question. Pelvic floor dysfunction is a syndrome and some seem to be much more sensitive to developing certain symptoms than others.

Some can have severe pelvic pain with no other symptoms. Some can have hard flaccid with no other symptoms. Some can have sexual dysfunction with no other symptoms. Some, like me, have every symptom in the book.

"Hard flaccid" is apparently a response to tension in the ischiocavernosus muscles. There are many more muscles in the pelvic floor. The ischiocavernosus muscle is not even innervated by the dorsal nerve (the branch of the pudendal nerve that supplies the penis). You can have tension in the ischiocavernosus muscle without significant tension in the other muscles of the pelvic floor. For example, the superficial and transverse perineal muscles, obturator internus, etc.

Pelvic floor dysfunction is a highly multivariable disorder. I am not sure why you are trying to attribute many of the symptoms to a psychological origin. Maybe you are paranoid of it progressing and take comfort in the thought that these symptoms don't actually exist. I just ask that you don't attempt to marginalize the condition as the symptoms can be devastating in the most severe cases.

I would like awareness of the condition to grow. Urologists are seemingly clueless for the most part and potential treatments (other than biomechanical correction, trigger point therapy, and stress management, which are not silver bullets in many of us) are seemingly unexplored.

I do not think its psychological at any case. I do think its purely physical but that the psychological aspect of the person is heavily burdened, which can exacerbate symptoms. There has been some theories of fascia issues and pelvic floor tension, but I won't get into it. The reason I doubt the pelvic floor stuff is because many people have tried pelvic floor therapy and a number of pelvic floor exercises for months and have seen no improvement. The only thing I'm saying is that many people with HF (and just HF) can get erections and have sex but they just can wrapped up in there symptoms that they never pursue it. OTher then that, I know that these symptoms can be much worse.

[bens]

Stretching will not cure motor overactivity. It is a common therapy for trigger points though. Trigger point therapy (stretching or pressure therapy) won't work either if you have what are called perpetuating factors. IE postural/biomechanical problems or even metabolic problems perpetuating the neuromuscular dysfunction.

Those therapies are not silver bullets. Any treatment rarely is. They help a subset of men, but I haven't seen benefit from them.

I suspect that the men with pelvic floor dysfunction induced by PE exercises who do not respond to therapy do have one or more perpetuating factors.

This is a rather new field of medicine. And response to physical therapy is not at all diagnostic.

[mikecares]

Stretching will not cure motor overactivity. It is a common therapy for trigger points though. Trigger point therapy (stretching or pressure therapy) won't work either if you have what are called perpetuating factors. IE postural/biomechanical problems or even metabolic problems perpetuating the neuromuscular dysfunction.

Those therapies are not silver bullets. Any treatment rarely is. They help a subset of men, but I haven't seen benefit from them.

I suspect that the men with pelvic floor dysfunction induced by PE exercises who do not respond to therapy do have one or more perpetuating factors.

This is a rather new field of medicine. And response to physical therapy is not at all diagnostic.

What do you think about this thread?

https://www.pegym.com/forums/penile-...-symptoms.html

He never got back to anyone but I did talk to him for a month and then he stopped replying.

[bens]

What do you think about this thread?

https://www.pegym.com/forums/penile-...-symptoms.html

He never got back to anyone but I did talk to him for a month and then he stopped replying.

I'm not going to read all 248 posts, but Buck's Fascia plays a critical role in an erection. The veins that drain the penis are supposed to be compressed between the inflated corpus cavernosum and Buck's Fascia.

Having said that, if you developed sexual dysfunction and HF at the same time, the most likely cause of your sexual dysfunction is pelvic floor tension. It is a waste of energy to brainstorm other possibilities in my opinion.

Now, you can fix your HF and still have sexual dysfunction. That's where I'm at. I had severe HF in the beginning and have progressed to the point that my HF is barely noticeable most of the time. I still have sexual dysfunction as I still have pelvic floor tension. It is possible that the men who have cured their HF, but not ED, have only partially improved.

The logical leap that 'alleviation of HF' = 'no more pelvic floor tension' is incorrect.

I'm not sure if this answers your concern. Are there any specific points from that thread you want me to address?

[terry947]

While now I've been thinking the exact same information bens is saying. Which is why I'm going to start takin low dose naltrexone and hope it helps improve my immune system. Besides internal massages, yoga/re, eating healthy and some sort of meditiation exercises there's not much we can do. Sadly.